The issue of obtaining informed consent is tricky—especially when you are asking a relative of a deceased patient for their loved one's organs. But, what if you are asking them to donate something most people have never heard of?
How relatives are asked for consent for tissue donation for biobanking, and what they remember, is the focus of research by Dean Laura Siminoff and a team of researchers as part of the Genotype-Tissue Expression project (GTEx), an NIH-funded project. The goal of GTEx is to collect tissue samples from 900 donors—all of whom are recently deceased.
In the Chronicle of Higher Education, Siminoff is interviewed on whether families, during a time of intense grief, understand and retain what is being asked of them.